Pamplona (EFE).- The Spanish Federation of Cystic Fibrosis is celebrating its biennial congress in Pamplona this weekend. She does this in a climate of hope for the application of drugs capable of “stopping the disease and changing your life in 70% of cases, although 30% continue without this type of treatment”.
This was highlighted by the president of the Navarrese Cystic Fibrosis Association, Cristina Mondragón, at the opening of the VIII Congress. This time it’s titled “Days of Change, Days of Hope” and it comes at an “exciting” time for his patients.
In this line, the Minister of Health, Carolina Darias, intervened by videoconference to highlight the positive evolution that access to treatments for this disease has experienced over the past year. He referred to the milestone reached in December 2021, when the drug “Kaftrio” was included in the funding of the national health system for affected people aged 12 or over.
Also for pediatric patients
“It meant a before and after for a very large number of people, an opportunity to live by improving the quality of life of patients,” said the minister.
To these advances, Darias has deepened, the incorporation of the 37.5 milligram presentation of Kaftrio for children under 30 kilos, approved last week, has been added. With the format for pediatric patients, public funding for all indications and presentations of this medicine is completed.
As for the conference, it presents the presentations of various experts who will focus on the challenges of living with cystic fibrosis, the advances in its treatment and the latest developments in the search for a definitive cure.
To do this, various round tables and workshops will deal with topics such as “Minority mutations: next treatments in development”, “Mental health in cystic fibrosis”, “Respiratory physiotherapy and physical exercise”, “Healthy recipes”, “Early access to new treatments in Spain” or “The effects of new modulators in cystic fibrosis”.
Similarly, the congress includes a poster room so that researchers or professionals can present their work and exchange knowledge.
Cystic fibrosis affects one birth in 3,000 and has more than twenty cases in Navarre, mostly children and young people. It is a degenerative and chronic disease that mainly affects the respiratory and digestive systems, and is a serious health problem, which may require a lung transplant in advanced cases.
Edition: Maria Montoya